This blog shares my journey with Ehlers-Danlos Syndrome and celebrates the achievement of completing a 50 mile run to raise funds for Breathworks.

Yesterday I shared on my Instagram feed about having to switch all my training over to bike-based for cardio and lower body/core for strength training due to injury, so I wanted to share a few things I've learned along the way about preventing injuries from derailing your progress towards your goals.

In my job I have the great privilege of travelling quite a bit, sometimes long distance. Today I’m writing this from my hotel room in São Paulo, after attending a conference for the past two days.

I figured it might be helpful for other EDS folks to share some of the ‘hacks’ I use to make travelling long distances for work something not only survivable, but enjoyable.

This weekend after a culmination of nearly a year's training, I completed my first ever marathon - and indeed ultramarathon - race at Endure24 Reading. A 24 hour running race which consists of running as many 5 mile, hilly trail loops as you can, Endure24 was my first ever long distance race, and I think I've got the bug!

During my training for Endure24 I started to pick up small but frustrating problems with my body - painful hip flexors and quads, a Mortons Neuroma, and struggling to progress further than about 8 miles. I had a gait and running analysis done to find out what I was doing wrong, and running re-education sessions to learn how to run properly!

Just over a year ago, I strained a muscle in my wrist while caring for a family member following an operation - little did I imagine the journey this would take me on over the course of the next year!  

Today is #InternationalWheelchairDay which has me reflecting just how much my life has changed since I decided to start using a wheelchair back in 2014.

A question I am asked regularly by visitors to my blog is how I am able to be well while I am working full time, often long hours, and mostly at a computer screen throughout the day.  

Living and working with Ehlers-Danlos Syndrome can seem like an uphill struggle at times, but there are some simple ways in which I think employers can support staff with EDS to be well at work.  I'll explore a few of my thoughts on this in this article.