Just over a year ago, I strained a muscle in my wrist while caring for a family member following an operation - little did I imagine the journey this would take me on over the course of the next year!
Yesterday I shared on my Instagram feed about having to switch all my training over to bike-based for cardio and lower body/core for strength training due to injury, so I wanted to share a few things I've learned along the way about preventing injuries from derailing your progress towards your goals.
Today is #InternationalWheelchairDay which has me reflecting just how much my life has changed since I decided to start using a wheelchair back in 2014.
Living and working with a health condition which is variable and generally not visible to the outside world can be a real struggle, and Ehlers-Danlos Syndrome is no different to any other.
In my job I have the great privilege of travelling quite a bit, sometimes long distance. Today I’m writing this from my hotel room in São Paulo, after attending a conference for the past two days.
I figured it might be helpful for other EDS folks to share some of the ‘hacks’ I use to make travelling long distances for work something not only survivable, but enjoyable.
The title should really be 'what are the Ehlers-Danlos Syndomes' as since 2017 there have been thirteen sub-types of Ehlers-Danlos Syndrome.
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